Many initiatives take involvement from ASPEN stakeholders. You can help by reaching out to legislators at the state and federal level and call or email them to share your opinion. Here are steps to take:
- Federal Congress: Go to www.congress.gov to find out your Senate or House members.
- Each of the lists provides their office phone numbers and email address.
- State level: enter https://www.XX.gov/ with XX the abbreviation for your state - For example www.PA.gov is the official state of Pennsylvania website.
- Use the letter template here to create your communication.
Call to Action: Priority Issues
The Medical Nutrition Equity Act of 2019 was introduced by Representative McGovern and others on May 2, 2019 (H.R.2501). This bill is intended to provide for the coverage in Federal Health Programs and private health insurances of medically necessary food and vitamins and individual amino acids prescribed or ordered by the physician or other qualified health professionals for digestive and inherited metabolic disorders. The medical food may be used for either partial or exclusive feeding of an individual by way of oral intake or enteral feeding tube. See attached bill for more details.
H.R.1888 The Expansion of Nutrition's Role in Curricula and Healthcare (ENRICH) Act – to provide for a grants program to develop and enhance integrated nutrition and physical activity curriculum in medical schools.
U.S. Senator Susan Collins (R-ME) and Senator Tina Smith (D-MN) introduced S.2723 Mitigating Emergency Drug Shortages (MEDS Act),
legislation that would help increase the supplies of vital drugs needed to
treat or prevent a wide variety of diseases, illnesses, and conditions.
House Energy & Commerce Committee Chair Frank Pallone (D-NJ) and Rep.
Brett Guthrie (R-KY) introduced legislation H.R.4866 National Centers of Excellence in Continuous Pharmaceutical
Manufacturing Act of 2019, that aims to limit drug shortages
and spur U.S. drug manufacturing by encouraging use of continuous manufacturing
in the development and approval of drugs and biologics. The bill would give FDA
$80 million to designate certain universities as National Centers of Excellence
in Continuous Pharmaceutical Manufacturing, which would study and recommend
improvements to continuous manufacturing.
A focus of the Digestive Disease National Coalition (DDNC) this
legislative year, a coalition to which ASPEN belongs, has been on STEP
therapy. Also known as a ‘fail first’ protocol, STEP therapy protocols
mandate patients try and fail medication preferred by the insurer before
approving medications prescribed by their doctor. This interferes with
the proper control of digestive disorders causing limitations in nutritional
intake, malnutrition, and the potential need for either enteral or parenteral
nutrition support. On November 30, 2019, DDNC coordinated a National Day
of Advocacy to encourage federal legislators to support the Safe Step Act (H.R.
2546). A summary of the Day of Advocacy and information on how to contact your
legislators to support the Act may be found at this link.
Older Americans Act Reauthorization
4334: Dignity in Aging Act of 2019 establishes,
reauthorizes, and revises several programs administered by the
Department of Health and Human Services and the
Department of Labor relating to care for the elderly. Among other
things, the bill reauthorizes through FY2024 and revises programs that support:
- caregivers of the elderly;
- informational services, such as
- nutritional services, such as
- disease prevention and health
- community and workforce
training regarding elder care; and
- abuse and neglect prevention
bill also establishes several entities and programs to further support elder
care, including initiatives that aim to promote independent
living and reduce social isolation for the elderly. This bill was passed in the
House on October 28, 2019 and then sent to the Senate where it sits on the
Legislative Calendar under General Orders.
The bill also establishes several entities and programs to further support elder care, including initiatives that aim to promote independent living and reduce social isolation for the elderly. This bill was passed in the House on October 28, 2019 and then sent to the Senate where it sits on the Legislative Calendar under General Orders.
The ASPEN Public Policy Committee will be addressing issues with Medicare Coverage Determination policy for home parenteral nutrition, realizing that this has been an issue for decades with very little response from the Centers for Medicare and Medicaid Services, or CMS. Access for beneficiaries continues to decrease year after year due to an outdated, restrictive policy which many Medicare replacement plans are also adhering to, further limiting patient access to care.
ASPEN Advocacy and Public Policy Coalition Memberships