SustainTM,LLC: A.S.P.E.N.'s National Patient Registry for Nutrition Care is a comprehensive, web-based tool that allows clinicians to enter patient data, measure and analyze results, benchmark outcomes against the aggregate data, and publish findings. The purpose of Sustain is to maintain a prospective, longitudinal nutrition therapy patient registry in order to improve patient outcomes. In its initial phase, Sustain will collect data on patients receiving Home Parenteral Nutrition (HPN). Home parenteral nutrition (HPN) has allowed patients with intestinal failure a life-saving option to receive vital nutrients and some individuals have survived for more than 30 years on this therapy. Subsequent phases of this registry will allow expansion to other populations and therapies.
The main goal of this project is to have participation of 100% of all new HPN patients in the US. The specific goals of this HPN phase are to:
- Collect information regarding the patients and populations who require home parenteral nutrition in the U.S.
- Measure outcomes associated with home parenteral nutrition
- Allow institutional benchmarking against the aggregate data and
- Publish the findings in order to improve the quality of care for patients receiving home parenteral nutrition.
Download a free informational webinar on Sustain today!
Sustain Events at Clinical Nutrition Week 2012
- Sustain Users and Prospective Users Interactive Session
Monday, January 23rd from 3:00 – 4:00 PM. Representatives from both pediatric and adult HPN will speak on their experiences with Sustain including processes and challenges, and answer your questions.
- Sustain: The Why, How and the Data
Tuesday, January 24, 2012 from 10:00 – 11:30 AM Speakers, Alan Parver, Marion Winkler, Ezra Steiger and Peggi Guenter will be discussing HPN and Public Policy, Sustain: Development and Operations, and Sustain: HPN Data.
- Live demo sessions: hands-on opportunity to try out the Sustain database system.
The Sustain Registry has been sponsored by an unrestricted scientific grant from Baxter Healthcare Corporation.
