Sustain^TM,LLC: A.S.P.E.N.'s National Patient Registry for Nutrition Care is a comprehensive, web-based tool that allows clinicians to enter patient data, measure and analyze results, benchmark outcomes against the aggregate data, and publish findings. The purpose of Sustain is to maintain a prospective, longitudinal nutrition therapy patient registry in order to improve patient outcomes. In its initial phase, Sustain will collect data on patients receiving Home Parenteral Nutrition (HPN). Home parenteral nutrition (HPN) has allowed patients with intestinal failure a life-saving option to receive vital nutrients and some individuals have survived for more than 30 years on this therapy. Subsequent phases of this registry will allow expansion to other populations and therapies.

The main goal of this project is to have participation of 100% of all new HPN patients in the US. The specific goals of this HPN phase are to:

1. Collect information regarding the patients and populations who require home parenteral nutrition in the U.S.
2. Measure outcomes associated with home parenteral nutrition
3. Allow institutional benchmarking against the aggregate data and
4. Publish the findings in order to improve the quality of care for patients receiving home parenteral nutrition.

Download a free informational webinar on Sustain today! 

If you missed the Sustain educational session at CNW12, access audio and handouts from the session.  Free to CNW12 Full Conference attendees. 

A.S.P.E.N. Announces Sites Participating in Sustain

A.S.P.E.N. announced on May 15, 2012 that 13 organizations are currently entering patient data into Sustain^TM, the organization’s national patient registry for nutrition care. An additional 28 organizations have enrolled and are in the process of gaining approval to participate. Sustain now has data on 324 patients receiving Home Parenteral Nutrition (HPN), and includes information on demographics, diagnoses and goals for PN, medications, PN formulas, types of catheters and other oral and enteral intake along with Quality of Life and Functional status measurements.  This data is exclusive to Sustain participating sites, which include:

• Children’s Hospital Boston
• Children’s Hospital of Michigan
• Cleveland Clinic
• Equinox Healthcare, Inc.
• Mayo Clinic - Jacksonville
• Pediatric Home Service
• Sharp HealthCare
• Spectrum Health
• SwedishAmerican Hospital
• Texas Children’s, Baylor College of Medicine
• Thrive-Rx
• University of Michigan, Mott  Children’s Hospital
• University of Pennsylvania

One-Year Anniversary of Sustain

A.S.P.E.N. is celebrating the one-year anniversary of Sustain.  Data on more than 250 patients using Home Parenteral Nutrition (HPN) has been entered into the registry to date, and 34 large medical centers, hospitals, and home infusion agencies have enrolled in the registry, with 10 entering data. Sustain is well on its way to becoming a valuable resource that registry participants and healthcare providers can rely on for information about the annual utilization of HPN. 

The Sustain Registry has been sponsored by an unrestricted scientific grant from Baxter Healthcare Corporation.